iHIT-HGG Registry

The iHIT-HGG registry collects epidemiological, diagnostic and clinical data from pediatric patients and young adults who are or have been treated at a pediatric oncology center of the GPOH in Germany, Austria and Switzerland. Our aim is to gain new insights into these very rare tumor diseases through continuous international cooperation.
The participation of oncological centers beyond the GPOH is very welcome.

• All new or recently diagnosed high-grade gliomas in neonates, infants, children, adolescents and young adults (patients aged up to 24 years undergoing treatment at a pediatric oncology center) are eligible for inclusion.
• Current, past or future participation in a clinical trial is desired and does not constitute an exclusion criterion.
• The written informed consent of the patient and/or the parents or legal guardians must be available.
• If it is not possible to obtain written consent, e.g. because the patient is already deceased, there are no plans to routinely record their data in the registry. However, if the patient's data is made available in anonymized form as part of a scientific cooperation project, it may be transferred to the data collection.
• A valid vote by a national and/or local ethics committee (IRB) in the participating country must be available.

E-Mailkontakt über hit-hgg-studie@med.uni-goettingen.de