Registry Rare Tumours (STEP 2.0)

Rare tumors that are not part of other prospective GPOH therapy trials or registries, such as skin tumors (including malignant melanomas), ENT tumors, gatrointestinal tumors (colon carcinoma, pancreatic tumors), rare gonadal tumors

Registry for the optimization of the epidemiological and clinical registration of children and adolescents with very rare tumors

1. Comprehensive prospective clinical data acquisition of particularly rare tumours in childhood and adolescence for more precise definition, characterisation and classification of rare tumour entities including long-term follow-up
2. Provision of clinical data for retrospective subgroup analyses in the context of research projects in order to contribute to improving the quality of diagnostics and treatment of children and adolescents with particularly rare tumour diseases
3. Support for translational research projects
4. Further development of the network for interdisciplinary cooperation in the field of rare tumours
5. Expansion of international collaboration
6. Cooperation with other GPOH registries, including the MET Registry, the Cancer Predisposition Registry and the INFORM Registry

• Diagnosis of a rare solid tumor (see list below, in German)
• The histological entity is not included as an inclusion criterion in a therapy optimisation study or GPOH registry for study or observational patients.
• Age at diagnosis: from the newborn period to 18 years of age (for young adults up to the age of 30, registration in the database can be made on request and after obtaining informed consent)
• Written informed consent of the patient and/or the parent(s)

• Registration into any other prospective therapy trial or registry of the GPOH
• Lack of information, medical consultation and/or the patients' and/or legal guardians' written consent