Neuroblastoma Registry 2016
Author: Julia Dobke, Last modification: 2024/10/29 https://kinderkrebsinfo.de/doi/e187752
Neuroblastoma Registry 2016 | Prospective multicentre registry for neonates, infants, children, adolescents, and adults with newly diagnosed and/or relapsed neuroblastic tumours (NB Registry 2016) |
---|---|
Disease | Newly diagnosed or relapsed neuroblastic tumour (neuroblastoma, ganglioneuroblastoma and ganglioneuroma) |
Type | Registry, without treatment recommendation |
Rationale / Objectives |
The demographic NB Registry 2016 serves as an overarching database to enable:
|
Therapy / Study arms |
The registry gives no treatment recommendation. Recommendations are published in the journal Klinische Pädiatrie (Simon T et al., Klin Padiatr 2017; 229: 147–167) and the AWMF guideline 025 – 008 (2019). |
Inclusion Criteria |
|
Recruitment | approx. 150 per year |
Status | Start: 01/01/2017, until further notice |
Principal Investigator | Prof. Dr. med. Thorsten Simon |
thorsten.simon@uk-koeln.de | |
URL | https://kinderklinik.uk-koeln.de/forschung/neuroblastom-studie/ |
Contact |
Trial Office Berlin: Counseling on high-risk neuroblastoma
Trial office Cologne: Counseling in general / on risk group classification with regard to patients with low- or intermediate-risk neuroblastoma including relapses within this group, counseling on trial NB2004 patients:
Trial office Greifswald: Counseling with regard to patients with neuroblastoma relapse who have not yet been included in the NB 2016 Registry Principal InvestigatorProf. Dr. med. Thorsten Simon Klinikum der Universität zu Köln Klinik für Kinderheilkunde: Hämatologie/Onkologie Kerpener Straße 62 50924 Köln Telefon +49 (221) 478 4380 Fax +49 (221) 478 4689 thorsten.simon@uk-koeln.de National Coordinator HR NeuroblastomaProf. Dr. med. Angelika Eggert Charité - Universitätsmedizin Berlin Klinik für Pädiatrie m.S. Onkologie/Hämatologie Augustenburger Platz 1 13353 Berlin Telefon +49 030 450 566 132 Fax +49 030 450 566 906 angelika.eggert@charite.de National Coordinator SR und IR NeuroblastomaDr. med. Barbara Hero Klinikum der Universität zu Köln Klinik für Kinderheilkunde: Hämatologie/Onkologie Kerpener Straße 62 50924 Köln Telefon +49 (221) 478 6853 Fax +49 (221) 478 6851 barbara.hero@uk-koeln.de National Coordinator Recurrent DiseaseProf. Dr. Holger Lode Universitätsklinikum Greifswald Allg. Pädiatrie mit Poliklinik/Päd. Onkologie Ferdinand-Sauerbruch-Str. 17475 Greifswald Telefon +49 (3834) 86 6301 Fax +49 (3834) 86 6410 holger.lode@uni-greifswald.de |
Sponsoring | German Childhood Cancer Foundation (Deutsche Kinderkrebsstiftung) |