GPOH-HD Study Registry

Author:  Julia Dobke, erstellt am 2021/10/13, Last modification:  2021/10/15

GPOH-HD Study Registry

Prospective Registry for children and adolescents with classical Hodgkin Lymphoma, nodular lymphocyte-predominant Hodgkin Lymphoma and relapsed Hodgkin Lymphoma
 

Disease

Classical Hodgkin Lymphoma, nodular lymphocyte-predominant Hodgkin Lymphoma and relapsed Hodgkin Lymphoma

Type

Prospective registry

Problem / Objectives

Prospective collection of key clinical data as well as biological samples of patients with primary diagnosis or relapse of different types of Hodgkin lymphoma diagnosed in Germany treated within or outside clinical trials.

The aims are:

  • Provision of standardized central review of key diagnostic procedures
  • Provision of counseling for local treating physicians
  • Correlation of clinical data with translational research projects
  • Provision of clinical data for future standardization of staging procedures
  • Provision of clinical data for the GPOH-HD late effects registry
  • The clinical data shall serve as a platform for international translational research projects with registries of other national study groups or consortia
  • Provision of a data base for future early phase clinical trials, e.g. with targeted therapies
Therapy / Study arms

The registry collects clinical and laboratory data of patients with Hodgkin lymphoma, prospectively. Therapeutic interventions are not planned within the scope of this registry. The GPOH-HD study group and the EuroNet-PHL-study group will provide treatment guidelines.

Inclusion Criteria

Any patient with histologically proven nLPHL, cHL, relapsed or refractory HL treated in Germany

Recruitment about 180 Patienten per year
Status Start 2020, End: open
Principal Investigator Prof. Dr. Christine Mauz-Körholz
E-Mail hodgkin@paediat.med.uni-giessen.de
Contact

Coordinating principal investigator

Prof. Dr. med. Christine Mauz-Körholz Universitätsklinikum Gießen und Marburg Zentrum für Kinderheilkunde der Justus-Liebig-Universität Gießen, Pädiatrische Hämatologie und Onkologie Feulgenstraße 12 35392 Gießen Telefon +49 (641) 985-59524/-43667 Fax +49 (641) 985-43429 christine.mauz-koerholz@paediat.med.uni-giessen.de

Sponsoring Deutsche Kinderkrebsstiftung